Who We Are

RAAP At A Glance

The Rare Access Action Project (RAAP) began in 2017 as an ad hoc coalition advocating for solutions to rare disease patient access in health care. Our organization has evolved and is now a registered 501 c4 non-profit that is engaged in ongoing initiatives on both the Federal and State levels.

Consisting of patient advocates, emerging life science companies, and other rare disease stakeholders, RAAP, is committed to exploring policy solutions to address structural issues in access and coverage. RAAP will engage with research, public education, issue advocacy, and lobbying activities to shine a light on the challenges facing rare disease patients while offering innovative solutions to reduce or eliminate barriers to rare therapies.
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Leadership Team


RAAP is led by Michael Eging. For 25 years, Mike has worked as a life sciences professional in Global, State and Federal Government Affairs, Advocacy, Communications and Market Access. With 12 years advocating on behalf of rare disease issues, Mike is a passionate advocate for solutions that make a difference in the lives of patients without a voice.

Michael Eging


RAAP Leadership Team

RAAP Leadership Team

Michael Eging


RAAP Leadership Team

RAAP Leadership Team


Michael is a 25-plus year veteran of the life sciences, having lead government affairs, public policy, and advocacy teams both in the U.S. and globally. Recently, he served as Vice President of Global Government Affairs and Advocacy at Novelion, as the company transitioned prior to being acquired by Amryt. He was responsible for market access-oriented government affairs and advocacy development in support of launches in Europe, South America and Japan.

While he has spent a number of years in larger global companies, he transitioned to the emerging life sciences where he led efforts in patient services, market access, payer strategies, product focused government affairs, and patient-oriented advocacy. Currently, Michael is a partner at Acuity Strategic partners where he has a practice that encompasses the life sciences, as well as the diagnostics and broader health care industry. In addition, Michael is a partner at Bridgewater Partners where he works with companies to develop compliant sales and marketing initiatives. Beginning in 2016, Michael also formed and leads a coalition of emerging, mid to large cap, and pre-market rare diseases companies and patient advocates known as the Rare Access Action Project. There he serves as the Executive Director with a focus on providing State and Federal solutions to enhance patient access to rare disease therapies.


Matt Salmon


RAAP Leadership Team

RAAP Leadership Team

Matt Salmon


RAAP Leadership Team

RAAP Leadership Team


Matt Salmon, former Congressman of Arizona’s fifth district, is now serving as the Vice President of Government Affairs and Professor of Practice at Arizona State University. He oversees the university’s international, federal, state, local, tribal and cultural relations teams, and assists the university in advancing its global strategy in creating an institution committed to excellence, access and impact.

He represented Arizona for five terms while in Congress, prior to retiring in 2016. During his time as a U.S. Representative, Salmon was a Member of the House Committee on Foreign Affairs, serving as Chairman of the Subcommittee on the Western Hemisphere and as Chairman of the Subcommittee on Asia and the Pacific, leading numerous delegations to China.

Matt lived in Taiwan as a Mormon missionary for two years and speaks fluent Mandarin. He earned his bachelor‘s degree at Arizona State University and holds a Master of Public Administration from Brigham Young University. He and his wife, Nancy, have been married for 42 years and are the proud parents of four children and of nine grandchildren.


Mac Haddow


RAAP Leadership Team

RAAP Leadership Team

Mac Haddow


RAAP Leadership Team

RAAP Leadership Team


Mac Haddow currently is a partner at Upstream Consulting, a government relations company in Washington, D.C; former chief-of-staff at the U.S. Department of Health and Human Services during the Reagan Administration; former state legislator in Utah (1980-81); and actively lobbies on a variety of health care related issues. Mac maintains an active involvement in his community, including presently serving as the president of the Oak Valley Homeowners Association; Board Member of Rise Up Prince William, a community nonprofit promoting philanthropic activities; co-chairman of the Gainesville Magisterial District Budget Committee; chairman of Carried to Full Term, a non-profit serving at-risk pregnant women and new born children; and actively serves in church leadership positions.


Jayson Slotnik


RAAP Leadership Team

RAAP Leadership Team

Jayson Slotnik


RAAP Leadership Team

RAAP Leadership Team


Jayson S. Slotnik is a Principal and founding member of Health Policy Strategies, Inc., a Washington, D.C. based consulting firm representing innovative biotech, pharmaceutical, device, and diagnostic companies. Jayson specializes in, and counsels clients on, the impact that Medicare and Medicaid coverage, payment, reimbursement, coding, and government policies have on commercial success. He also has experience as a healthcare strategist with demonstrated success in developing and implementing both pre- and post-launch strategies as well as life cycle management tools for pharmaceutical, biotechnology, diagnostic, and device manufacturers.


Jeff Anders


RAAP Leadership Team

RAAP Leadership Team

Jeff Anders


RAAP Leadership Team

RAAP Leadership Team


Jeff Anders is the Founder and Principal of Jeffrey Anders Government Strategies, LLC, a Washington, D.C. based strategic consulting firm, focusing on federal and state government affairs, public policy, alliance development, and stakeholder engagement in the healthcare sector.

Jeff has nearly 30 years of experience and success in developing and  influencing the outcomes of federal health policy, with a focus on legislative and regulatory issues, including health care financing and delivery system reform; the Medicare and Medicaid programs;  health equity/health disparities;  federal funding,  budget and appropriations; the  Food, Drug and Cosmetic Act and the Affordable Care Act; rare disease, market access, value assessment,  and other health care funding, coverage and payment matters. He represents biopharma and medical technology companies, patient and professional organizations, academic medical centers and a variety of healthcare related coalitions. Before creating his consulting firm in 1998, Jeff served in a leadership role in government affairs and policy at the Pharmaceutical Research and Manufacturers of America (PhRMA), representing the nation’s leading research based pharmaceutical and biotechnology companies. Jeff began his public policy career working on the professional staff of the United States Senate, serving as Committee Counsel to both the Health Education Labor and Pensions (HELP) Committee and the Budget Committee, as well as Legislative Counsel to U.S. Senator Christopher J. Dodd (D- Connecticut). Jeff earned his B.A. degree in History and Political Science (magna cum laude) from Duke University and his J.D. degree from Duke University School of Law.

 


Katie Casper


RAAP Leadership Team

RAAP Leadership Team

Katie Casper


RAAP Leadership Team

RAAP Leadership Team


Katie has managed fundraising for nonprofits based in the Washington, D.C. area for the last decade. Currently, part of the Epiphany Productions team, Katie has worked with clients across a broad range of industries, including: a sports-focused youth development organization, several clients in the rare disease community, a legal trade association, and a national memorial and visitor center, helping all to reach and exceed fundraising goals. Please reach out to Katie for information on RAAP membership as well as projects and event sponsorships.


Evan Kozlow


RAAP Leadership Team

RAAP Leadership Team

Evan Kozlow


RAAP Leadership Team

RAAP Leadership Team


Evan Kozlow has worked as a political consultant and public affairs specialist developing an extensive background in non-profit and campaign management, media production, issue advocacy and grassroots mobilization. He has helped manage and promote public policy events such as “Financing & Innovation for Global Health (FIGH), a Johnson & Johnson event that worked to develop a new platform to develop solutions to global health challenges. Evan has worked as a Chief of Staff to a Member of Congress, served as the Deputy Executive Director at the NRCC, and has played a key role in the start-up and development of several corporate entities and non-profit organizations including the Rare Access Action Project.


Angela Lively


RAAP Leadership Team

RAAP Leadership Team

Angela Lively


RAAP Leadership Team

RAAP Leadership Team


Angela (Menchaca) Lively has 20+ years of experience analyzing, understanding and determining implications of health and reimbursement policy changes on beneficiaries, providers, health systems and manufacturers, particularly as it relates to access to new technology. Throughout her industry and consulting experience she has supported the launch of dozens of products and has spent her career understanding the intersection of coverage, coding, and reimbursement with broader health policy change and the effect of those changes on patient access and provider decision making. She has spent her career advising companies on how to prepare, optimize and address market access barriers to improve access and how to evolve those market access strategies given the evolution in the health care environment. She has particularly focused on the market access elements of health system change, coverage, coding, and reimbursement across settings of care, beneficiary protections, value determination, alternative payment models, and quality measurement.  For over two decades she has monitored Congressional and Administrative changes as well as the rulemaking process at CMS across settings of care (IPPS, OPPS, MPFS, SNF/LTC, Part D/Medicare Advantage) and across benefit categories (medical, pharmacy, DME). She has extensive experience in many clinical areas including oncology, nephrology, primary care, neurology, and rare diseases. She has both industry experience with tenures at Amgen and Abbott (now Abbvie) as well as consulting experience at Covance, Avalere, and as a partner at ADVI before establishing her own firm, Lively Consulting, LLC.


Ms. Lively completed her Masters in Social Work with a concentration in health policy from The Catholic University of America and has Bachelor of Arts degrees in Psychology and Sociology from Baylor University. 


Jeff Oldham


RAAP Leadership Team

RAAP Leadership Team

Jeff Oldham


RAAP Leadership Team

RAAP Leadership Team


Jeff is Founder and President of JTO Public Affairs, a healthcare consultancy based in Washington, DC. Jeff brings over 25 years of grassroots/public affairs experience to RAAP.  He services Fortune 500 and trade association clients across the healthcare spectrum.  In that capacity he assists in coalition management, message development and implementation of strategic programs to help his clients meet their legislative goals in DC and beyond. Jeff has political/local contacts in every state and congressional district in the United States at both ends of the political spectrum and has run campaigns on a wide array of topics.

Additionally, Jeff serves on the board of Patients Rising, a patient-centered advocacy organization dedicated to helping individuals get the health care services they need.


Board of Directors


Michael Eging


Chairman of the Board

Shelly Rosenstock


Secretary of the Board

Jennifer Beachell


Member of the Board of Directors, Membership Development

Evan Kozlow


Treasurer of the Board

James Tyrell III


Counsel and Compliance