We are excited to be hosting our 2nd Annual Workshop and Awards focusing on policy initiatives and issues that affect rare disease patients and their ability to access new treatments and therapies. Attendance is not limited, but registration is required (Registration is FREE for Patient organizations, congressional staff, and RAAP Member Organizations, and $50 per attendee for Non-RAAP Member life sciences companies).
Please join RAAP, Special Guest Speakers, Member and Patient Organizations this fall to engage in important discussions about access to care for rare disease patients, to hear patient stories, and to discuss how RAAP and our community members can move forward to affect necessary policy change at both the state and federal levels.
10:00AM EDT
Topic 1: “What keeps RAAP Up at Night?”
10:30AM EDT
Topic 2: Political Dynamics, Reconciliation, Drug Pricing and Rare Disease Access
11:30AM EDT
Topic 3: Federal RAAP Up and Action Discussion
12Noon EDT
Lunch Break/Awards/Guest Speaker
1:00PM EDT
Topic 4: Medicaid – Trends, Challenges, and Solutions
2:00PM EDT
Topic 5: Access at the Local Level
2:45PM EDT
Topic 6: State RAAP Up – Engaging in 2022
3:00PM EDT
Closing Remarks/Next Steps