RAAP Events - Rare Access Action Project

RAAP LEARNING HUB PRESENTATION: “ADDRESSING ACCESS ISSUES FOR RARE DISEASE PATIENTS

The Rare Access Action Project (RAPP), sponsored and ran a panel during the Learning Hub portion of the National Conference of State Legislatures (NCSL) Legislative Summit held in Indianapolis, IN.
Click HERE to learn more.

RAAP Conference Agenda

Sign up for the RAAP 3rd Annual Meeting

Name*
First Last
Email*
Event attendance*
- Attend in-person
- Attend online via Zoom
CAPTCHA

RAAP Spring Workshop

Panels from RAAP’s 2021 Annual Meeting

What Keeps RAAP Up at Night?

Rare Access at the Federal Level (and Rare Access Leadership Award to Rep. Scott Peters – CA-52)

Federal RAAP Up and Action Discussion

RAAP Rare Access Leadership Awards (Ohio State Senator Stephanie Kunze and Khrystal Davis – Texas Rare Alliance)

Cross State Medicaid Challenges for Medically Fragile Children (Presented by Orchard Therapeutics)

State Dynamics – Solving Access Issues at the State Level (Presented by Biogen)

State RAAP Up