Address: At the Rare Hub, 1012 14th Street NW, Suite 500 Washington, DC 20005

RAAP Events


Join RAAP for the


Sponsored By:


Click below to register:

Register Here

RAAP is excited to be hosting a Virtual Access Workshop and Awards for the rare disease community on November 17, 2020. Attendance is not limited, but registration is required. Registration is FREE for Patient and RAAP Member Organizations, $50 per attendee for Non-Member life sciences companies.

Please join RAAP, Members of Congress, Member Companies and Patient Organizations to learn more about RAAP (who we are, what we do), to engage in important discussions about access to care for rare disease patients, hear patient stories, and discuss how RAAP and our community members can move forward to affect necessary policy change at both the state and federal levels.

Awards Presented to:

Sen. Orrin G. Hatch

Rep. Dianna DeGette

Rep. Fred Upton

Panel discussions to include:

  • The Election Results and Potential Effects on Access Issues
  • COVID-19 and High-Risk Rare Disease Patients
  • Medicare and Medicaid Challenges
  • Innovative Payment for Rare Disease Medicines
  • Cures 2.0 and Other Policy Proposals

Featuring panelists from the following organizations:

  • Mass Bio
  • Gilead
  • BIO
  • Little Hercules Foundation
  • Orchard Therapeutics
  • AHIP
  • NCSL
  • Milliman
  • Congressional Offices

Registration Information

RAAP Member Companies, Patient Organizations and Congressional Office Representatives can attend for FREE.

Non-Member Companies – $50/attendee

Register for this event by clicking below:

Register Here


For sponsorship and registration questions, please contact Katie Hoesch Casper at 732-977-6612 or [email protected]


Sponsorship Opportunities