We are excited to be hosting our 2nd Annual Workshop and Awards focusing on policy initiatives and issues that affect rare disease patients and their ability to access new treatments and therapies. Attendance is not limited, but registration is required (Registration is FREE for Patient organizations, congressional staff, and RAAP Member Organizations, and $50 per attendee for Non-RAAP Member life sciences companies).
Please join RAAP, Special Guest Speakers, Member and Patient Organizations this fall to engage in important discussions about access to care for rare disease patients, to hear patient stories, and to discuss how RAAP and our community members can move forward to affect necessary policy change at both the state and federal levels.
Topic 1: “What keeps RAAP Up at Night?”
Topic 2: Political Dynamics, Reconciliation, Drug Pricing and Rare Disease Access
Topic 3: Federal RAAP Up and Action Discussion
Lunch Break/Awards/Guest Speaker
Topic 4: Medicaid – Trends, Challenges, and Solutions
Topic 5: Access at the Local Level
Topic 6: State RAAP Up – Engaging in 2022
Closing Remarks/Next Steps