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For Rare Innovation, One Size Does Not Fit All

Washington, D.C. (09-29-2021) - The Rare Access Action Project, (RAAP), released an updated study reflecting the impact to companies that develop treatments for Rare Diseases through proposed...Read More

Comments in response to MACPAC’s recent recommendations for the 2021 Congressional report

On behalf of the Rare Access Action Project (RAAP), we appreciate the opportunity to submit the following comments in response to MACPAC’s recent recommendations for the 2021...Read More

Medicare Part D: A Sledgehammer On A Fragile Market, When A Scalpel Is Needed

When is the last time anyone heard of a government program not only working well, but also coming in under budget? Yet that is the reality of Medicare Part D, a market-driven program that...Read More

Efforts to Cut Drug Prices Would Harm Rare-Disease Patients

Government policy changes sometimes have all the subtlety of a steam roller, barreling forward without sufficient regard for everything in its path. Such is the case today with proposed changes...Read More

Rare Access Action Statement on HR 3

On April 22nd, 2021, the House reintroduced Elijah E. Cummings Lower Drug Costs Now Act (H.R. 3) to address the affordability of drugs and biologicals in the United States, which includes the...Read More

Opposition Letter to HR3 Price Controls in Reconciliation Package

Dear Chairman Pallone and Ranking Member McMorris Rodgers, The undersigned organizations write to voice our concern and opposition to the inclusion of policies like H.R. 3 in the upcoming...Read More

Former Congressman Matt Salmon To Join RAAP

The Rare Access Action Project, (RAAP), announced today that former Arizona Congressman Matt Salmon will be joining RAAP as a key advisor on rare disease issues. “We are very excited to...Read More

Rare Disease Patients Need Access To Therapy Innovations

One lesson we’ve learned from Covid-19 is that if innovative medical solutions, therapies and vaccines are available, accessible and affordable, then hundreds of millions of lives can be...Read More

Changes in Medicare Part D Benefit Design Can Impact Availability of Future Treatments

With almost 50 million beneficiaries enrolled in the program, the Medicare prescription drug benefit (Part D) is considered by many to be a model of a successful government insurance...Read More

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