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RAAP APPLAUDS BIPARTISAN LEGISLATION TO FIX “PILL PENALTY”

RAAP APPLAUDS BIPARTISAN LEGISLATION TO FIX “PILL PENALTY”   Washington, D.C. (2-5-24) – The recently enacted Inflation Reduction Act (IRA), creates different Medicare price...Read More

BIDEN ADMINISTRATION “MARCH-IN” POLICY

Throwing Gas on the IRA Fire That’s Burning Rare Disease Patients Hope   Washington, D.C. (12-12-2023) – On December 7th, the Biden administration announced its plans to clarify the...Read More

RAAP APPLAUDS US DISTRICT COURT DECISION TO STRIKE DOWN HHS RULE TO ALLOW INSURERS TO NOT COUNT COPAY ASSISTANCE

Washington, D.C.  (10-2-2023) – Patients who depend on prescription drugs won a major victory in U.S. District Court as the Court struck down a federal rule that had allowed health insurers...Read More

Colorado Prescription Drug Affordability Board & Members of the Prescription Drug Affordability Advisory Council (PDAAC) Letter

Members of the Colorado Prescription Drug Affordability Board & Members of the Prescription Drug Affordability Advisory Council (PDAAC): Thank you for the opportunity to comment. As part of...Read More

Inflation Reduction Act to Harm Rare Disease Innovation

The recently passed Inflation Reduction Act (IRA) was hailed by supporters as a major milestone for reducing costs across a range of sectors, including prescription drug prices. The Rare Access...Read More

Serious Concerns Raised by SB 351 for Patients with Rare Diseases

RAAP (Rare Access Action Project) just recently became aware of legislation which has the potential for devasting effects on people with rare diseases and respectfully urges you to veto SB 351,...Read More

Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs

Support Federal Legislation to Ban Quality Adjusted Life Years (QALY) in all federal programs. We write as patient representatives to ask each of you to support H.R. 485, the Protecting...Read More

Patient Protection Bill Wins Big in Utah Senate

SB 184 (1st Substitute) Wins Unanimous Vote in the Utah Senate Business and Labor Committee Salt Lake City, Utah (2-11-23) – Senator Curt Bramble’s legislation banning PBMs and...Read More

MACPAC’S Mission is to Ensure Access. NOT DENY it to Our Most Vulnerable!

RAAP Set to Fight MACPAC Efforts to Restrict Access to Rare Medicines in Medicaid. On Friday, January 27th, the Medicaid and CHIP Payment and Access Commission (MACPAC) voted to recommend that...Read More

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