Serious Concerns Raised by SB 351 for Patients with Rare Diseases
RAAP (Rare Access Action Project) just recently became aware of legislation which has the
potential for devasting effects on people with rare diseases and respectfully urges you to veto SB 351, which
risks curtailing Montanans’ access to key clinical care and research opportunities. As detailed further below,
the bill, as amended, could drastically limit genetic research that would lead to new therapies and cures
benefiting individuals with rare diseases.
