RARE ACCESS ACTION PROJECT

Providing Education, Advocacy & Access On Behalf of Rare Disease Patients and Families!

RAAP is a coalition of life sciences and patient stakeholders that explores creative policy solutions to address structural issues in access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments that they need.

Patient Stories

RAAP IN ACTION

October 23-24 - BIO Patient and Health Advocacy Summit

October 30 - RAAP PDAB Webinar Series Register

November 14, 2024 - RAAP Annual Access Meeting Register

INITIATIVES

“Action” is a key component of who we are and what we do. While think tanks play important roles for advancing science, medicine and policy, the Rare Access Action Project (RAAP) focuses on specific, achievable and measurable campaigns designed to support the rare disease community and its various stakeholders.

NCSL

PDAB

IRA

Patient Engagement Caucus

In the News

Keep up with RAAP

RAAP Events

Upcoming and past events