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RAAP 2023 Fall Policy Conference

Rare Access Action Project’s 2023 Fall Policy Conference covers the implications of the IRA on Rare Disease Drug Development and Innovation, modernizing the approach to Newborn Screening and Genetic Testing, and an overview of State Health Issues for 2023 plus the outlook for 2024 including RDACs and PDABs. This event brings together legislative stakeholders, industry experts, state and federal panels, and patients to discuss access challenges and solutions.

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August 15

ADDRESSING ACCESS ISSUES FOR RARE DISEASE PATIENTS

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January 10

PDAB Workshop